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Stroke continues to be the leading cause of death and disability, especially in rural regions of the United States like Pennsylvania. Survivors and caregivers in these areas often face greater obstacles, from limited access to medical care and specialists to social isolation and lack of support resources. These challenges lead to poorer outcomes, higher stress, and greater health disparities.
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Our initiative is designed to close these gaps by partnering directly with stroke survivors, caregivers, healthcare providers, and local community members. Together, we aim to identify real needs and create research that leads to practical, community-driven solutions.
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Our initiative is designed to close some of these gaps by partnering directly with stroke survivors, caregivers, healthcare providers, and local community members. Together, we aim to identify real needs and create research that leads to practical, community-driven solutions.
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<h3class="text-2xl font-semibold mb-4 gradient-text">Understanding Our Research Process</h3>
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This is a two-year project structured into two distinct phases.
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<strong>Phase One</strong> focuses on recruiting Community Advisory Board (CAB) members, conducting orientation and training sessions, and holding initial meetings to establish the foundation of the project. During this phase, we also finalize preparations such as IRB submission and launching the project website.
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<strong>Phase Two</strong> centers on engaging stakeholders, identifying and onboarding members of the rural stroke community, and organizing meetings to collaboratively explore and define their unique needs and priorities. This phase also includes forming topic groups, developing the engagement roadmap and dissemination plan, and culminating in events, publications, and a final report.
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This timeline reflects a methodical approach to community engagement, stakeholder inclusion, and patient-centered research.
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<h4class="text-xl font-semibold mb-4 gradient-text">Inside the PCORI Project: A Conversation</h4>
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<pclass="text-base text-gray-600 mb-4 text-center">Join us for a conversation about our PCORI project, where we share how it began, the people involved, and the impact we hope to make</p>
<h3class="text-2xl font-semibold mb-4 gradient-text">Understanding Our Research Process</h3>
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Over two years, this project moves from building a strong foundation to delivering meaningful, community-driven outcomes.
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It begins with recruiting Community Advisory Board (CAB) members, hosting orientation and training sessions, and holding initial meetings to guide the project's direction. Early milestones also include finalizing the IRB process and launching the project website.
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As the work progresses, we engage stakeholders, recruit and onboard members of the rural stroke community, and work together to identify key needs and research priorities. Topic groups are formed, training is provided, and a clear engagement and dissemination plan is developed. The project concludes with community events, scholarly publications, and a comprehensive final report.
<imgsrc="https://images.unsplash.com/photo-1552664730-d307ca884978?ixlib=rb-4.0.3&ixid=M3wxMjA3fDB8MHxwaG90by1wYWdlfHx8fGVufDB8fHx8fA%3D%3D&auto=format&fit=crop&w=2070&q=80" alt="A person speaking or presenting, symbolizing voice and input" class="rounded-xl shadow-lg w-full h-auto object-cover">
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Your lived experience is essential. By sharing your story and insights, you help ensure that research efforts focus on what truly matters to rural stroke survivors and their families.
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Together, we can guide meaningful change in stroke care and recovery. Your unique perspective is the cornerstone of truly patient-centered outcomes research.
<imgsrc="https://images.unsplash.com/photo-1552664730-d307ca884978?ixlib=rb-4.0.3&ixid=M3wxMjA3fDB8MHxwaG90by1wYWdlfHx8fGVufDB8fHx8fA%3D%3D&auto=format&fit=crop&w=2070&q=80" alt="A person speaking or presenting, symbolizing voice and input" class="rounded-xl shadow-lg w-full h-auto object-cover">
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Your lived experience is essential. By sharing your story and insights, you help ensure that research efforts focus on what truly matters to rural stroke survivors and their families.
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Together, we can guide meaningful change in stroke care and recovery. Your unique perspective is the cornerstone of truly patient-centered outcomes research.
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